Add an eventSessions at SXSW Interactive 2011 about Healthcare and Social Media
Sunday 13th March 2011
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Patients/Caregivers on Facebook: Establishing Boundaries Without Barriers
by Dana Lewis, Daniel Goldman, Ed Bennett, Jennifer Shine Dyer and Keely Kolmes
Social media platforms create new challenges for healthcare practitioners and other professionals who actively participate in online communities that have emerged on Facebook, Twitter and similar applications. While it's not unusual for those with chronic health issues and long term medical problems to build close relationships with care providers "in real life" - legal, ethical and practical issues emerge when patients/clients seek to add care providers to online networks.
How, for example, should a pediatric nurse respond when a cancer patient's mom wants to become a Facebook "friend"? What parameters must be established now that these public conversations could become of an official medical record? What else is preventing medical staff and healthcare organizations from adopting social media?
Engage with panelists - patients and healthcare workers - who actively use social media and are articulate advocates for its benefits in the complex world of healthcare delivery. Panelists for this session have developed ways to establish appropriate boundaries without creating barriers to health education and empowerment.
Attendees will develop a more sophisticated awareness of privacy and engagement within online communities. They'll learn how those in the healthcare community have dealt with significant concerns and developed effective ways to resolve ethical conflicts, and will leave the session with a framework for addressing similar concerns within their own networks.
LEVEL: Beginner
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Minority Report: Social Media for Decreasing Health Disparities
by Aimee Roundtree, Greg Beets, Jen McClure, Maryland Grier and Wenying Sylvia Chou
This presentation will highlight the Connecticut Health Foundation’s (CT Health) partnership approach to decreasing racial and ethnic health disparities through social media. CT Health’s social media goal is to build public will that will move people to act(ion) – and along the way – create a social movement to toward health justice. Cited as one of few foundations of this size that is investing in social media to create dialogue about health disparities beyond academic circles, CT Health has partnered with social media experts, public health professionals, and community advocates and influential leaders. Recognizing there is no clear blueprint for philanthropy using social media to do this work; CT Health will share its path to raising awareness about the consequences and implications of health disparities via social media.
LEVEL: Intermediate
Monday 14th March 2011
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Social-Powered Ethics: Healthcare Faces a New Curve
by Carissa Caramanis O'Brien and Matt Cyr
Social media has seen rapid growth, but healthcare, a highly regulated and sometimes conservative industry, started as a somewhat reluctant player. Challenged with the need to comply with HIPAA guidelines as well as FDA marketing policies--even before the agency had addressed social media--healthcare organizations and their audiences were left to figure it out as they went along.
Led by some smart innovators, social health emerged in 2010 as a force to be reckoned with. Still, there have been missteps as well as successes, and many questions remain. Chief among them is the ethics of social media in healthcare, and how transparency may or may not be the ultimate cure-all. Two social health advocates--a leading social health consultant and an executive from one of the nation's premier hospitals--will lead an interactive discussion to explore the multifaceted challenge of social-powered ethics in healthcare.
Some of the topics they'll tackle include the birth of the fPatient, the over/under on disclosure, the friendly ghostwriter, and turning regulatory and legal into champions. Attendees will help shape the conversation and walk away with actionable strategies to apply to their social media efforts.