Health Communities: Superheroes Who Need a Justice League

A session at SXSW Interactive 2011

Sunday 13th March, 2011

3:30pm to 4:30pm (CST)

Research shows online health communities (OHCs) offer extensive benefits to members. But the variance in quality and effectiveness is huge. And Pew Internet research shows only 52% of adults with multiple chronic illnesses go online for health information. A good OHC .has the power to change lives. For many people, the worst day of their life is when they’re diagnosed; OHCs can provide respite, education and empowerment when members otherwise would feel alone. There’s as much demand for, say, an OHC on Raynaud's Phenomenon as there is for one on knitting. Yet while Ravelry is bustling, gorgeous and easy to navigate, good luck finding a useful forum about life with cold toes and hands. OHCs could be better. They need a governing board, or a set of principles to aspire to follow. I would lead a presentation on: Strategies for helping OHCs get around black hat SEO so they’re easier to find, especially by novices; Ways OHCs can partner with hospitals or other organizations, avoiding conflicts of interest while capitalizing on their financial stability and resources; Techniques for teaming with non-profits to extend reach; Ways to reach under-served populations, including people of color, families below the poverty level, rural communities and the aged; How to keep members long-term using better I.A. and usability; Using strategies of the biggest OHCs for niche OHCs

LEVEL: Intermediate

About the speaker

This person is speaking at this event.
Jennifer Prokopy

writer; editrix of chronicbabe.com, for young women who live incredibly in spite of chronic illness; lover of all things orange and pink bio from Twitter

7 attendees

  • jenni prokopy
  • Ed Bennett
  • erwin blom
  • Andrew Huff
  • Ryan D Gantz, DOG
  • Stefan Nowak
  • Doug Wager

6 trackers

  • Meghan Searl
  • Benjamin Turner
  • Dan Weingrod
  • Jason Lewis
  • Shelley Cook
  • Bridget Houlihan

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Time 3:30pm4:30pm CST

Date Sun 13th March 2011

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